All Blog Posts (47)

assistance

I have a friend who had a kidney transplant a year ago. He has maxed out his Health Insurance and depleted his HSA. He has now been diagnosed with leukemia that is a direct result of the transplant. Do you guys know of a charitable organization that might be willing to help him financially? The medicati… Continue

Added by Cindy Fallsen on January 12, 2010 at 7:12pm — 1 Comment

One Click Can Save Thousands of Lives

Hello friends. I am trying to help a very dear friend of mine and ostensibly yours. John Piano is the founder of Transplant Connect and a simple click of your mouse http://thegentlemensfund.com/final_vote.asp will help him win The GQ Gentlemen's Fund 2009 contest and further a great cause for families like yours all over America. So, I hope you will click your mouse on the link above and also take 30 seconds and read th… Continue

Added by Francis DeGiorgio on October 6, 2009 at 6:30pm — No Comments

Will Pay Top $$

My cousin is dieing and family is looking for a kidney asap, I am from a very wealthy family, we are looking to pay top money to keep our cousin with us, money is NO option for us,just a good healthy kidney, please help us and our family, you seem like a great canidate, please send me your info where I can reach you asap, phone number etc. address thanks Joshua Spilberg Continue

Added by Joshua on July 24, 2009 at 1:09pm — 3 Comments

HCV AND POST LIVER TRANSPLANTS

IF YOU OR A LOVED ONE HAS HAD A LIVER TRANSPLANT WITH HCV AND END STAGE CIRROHIS,ESPECIALLY WITH A HIGH VIRAL LOAD AT TRANSPLANT,KISTEN TO ME!!!THIS IS NOT THE CURE ALL ANSWER[THE NEW LIVER]THE HCV VIRUS WILL MOST LIKELY ATTACK THE NEW LIVER WITHIN 3 MONTHS,SO BE PREPARED Continue

Added by KIMBERLY on June 25, 2009 at 6:11am — No Comments

Prograf - Avoid

Subject: Kidney failure after long-term use of Prograf (following Liver Transplant). Patient's new kidney also began to slowly fail/decline (initially after transplant, while still on Prograf). The new kidney immediately began to recover after stopping the Prograf. Expert medical studies show that Prograf is toxic to the kidneys... Medical studies by experts at Albert Einstein Transplant Center support/promote the idea of stopping Prograf due to toxic effects on the kidney and using Cellcept (a… Continue

Added by Robert on June 20, 2009 at 2:00pm — 1 Comment

Weekly Infusion

Just had my latest infusion of Albumin and Lasix on Wednesday. Thursday I slept for 15 hours! It always takes the wind out of me the day after, but normally by Friday I am feeling tons better, even better than before I had the infusion. My labs came back pretty stable setting my Meld at 13. I really hate seeing it drop again during my hospital stays. I went into the hospital at 23 and after a week of pills and IVs they get it to go down. Seems kind of pointless. How am I ever going to get a live… Continue

Added by Walter Stephen Marr on June 5, 2009 at 3:11pm — No Comments

I am a Heart Transplant Patient I might have Dresslers Syndrome ?????

Does anyone know about this I had a fever of 102.2 last week shoulder pain and trouble breathing I am a heart transplant patient it might be dresslers syndrome as it can happen weeks to months after a transplant or injury. I had a pericarthesis done to remove fluid surrounding the outer layer of my heart. any suggestions welcome no sign of ammonia or flu or any other virus or disease, I am thinking this is common in open heart surgery any suggestions or same expierences???? Continue

Added by Lawrence R. Decoste on June 1, 2009 at 2:36pm — No Comments

i would like to help someone with a kidnet

i am located in jacksonville florida.how does this work?who pays for the surgey? Continue

Added by amy scheidegg on May 3, 2009 at 4:03pm — 2 Comments

Heroes Of Hope

HEROES OF HOPE by Ashley Tenczar Curran I think it was the first time that I heard the words..”He needs a liver transplant”, that it all sort of sunk in to my brain, and I thought I had a grip on the situation. That was before those words went on a journey through my soul, and lan… Continue

Added by Ashley Curran on April 23, 2009 at 9:06am — No Comments

shoulder pain

my shoulder needs to be xrayed soon..hurry? necrosis is necrosis, my discomfort has gotten too uncomfortable. Similar to the pain before, in my hips and knee. Onset? It's not a weight bearing joint/bone, so the need to compensate for the pain in my daily mobility isn't urgent, noticeable. The discomfort wakes me, so that is an issue I need to address. I'm going to make a Ortho appt after I submit my blog. Thanks for letting me share my moment/time with all of you. I hope my blog finds everyone w… Continue

Added by yolanda on March 30, 2009 at 3:16pm — 1 Comment

Licorice May Block Effectiveness Of Cyclosporin

Chemists in Taiwan are reporting that an ingredient in licorice widely used in various foods and herbal medicines appears to block the absorption of cyclosporine, a drug used by transplant patients to prevent organ rejection. This drug interaction could potentially result in transplant rejection, causing illness and even death among patients worldwide who take cyclosporine and licorice together, the researchers caution. The study is the first… Continue

Added by Gustavo on March 25, 2009 at 3:30pm — 2 Comments

1000 members in our cause on FACEBOOK

We arrive at 1000 members in our cause "Everyone has the right to receive a transplant" on FACEBOOK Thanks to all Continue

Added by Gustavo on March 9, 2009 at 7:33pm — No Comments

New features

1) This is a world site . Now you can read Transplant Groups in your language with the translator ( on the right side). 2) Last Fact about Tx in USA from UNOS ( slides) 3) New Page : Resources for patients Continue

Added by Gustavo on February 28, 2009 at 6:13pm — No Comments

Everyone has the right to receive a transplant - The Cause on FACEBOOK

In many countries only rich people or with good health insurance can access to a transplant. Fight for all people of the world can receive a transplant supported by the public health. This is the cause of Transplant Groups on FACEBOOK .… Continue

Added by Gustavo on February 27, 2009 at 9:03am — No Comments

What Minorities Need to Know About Organ Donation and Transplantation www.bobsnewheart.wordpress.com

February 25, 2009 In the past my posts have been very general about the need for and benefit of organ donation. Today, though, I want to be more specific and discuss how minorities are affected by organ donation and transplantation. There is some evidence to indicate a reluctance to donate by minorities is based on what they believe is unequal treatment – minorities giving up organs for rich non-minorities. The facts are clear – more members of the minority population will benefit if there is a… Continue

Added by Bob Aronson on February 26, 2009 at 11:42am — No Comments

Transplant Patient Hopes for New Heart This Valentine's Day

Meagan and her daughter, Shelbi Read this article from the Tulsa World newspaper about a young mother, NFT patient Meag… Continue

Added by National Foundation for Transplants on February 17, 2009 at 1:48pm — No Comments

Rihanna Helps 5-Year-Old Fan Look for Bone Marrow Donor

Rihanna is stepping forward to help a 5-year-old New York City girl find a bone marrow donor – the second time in a year that the Grammy Award winner has helped a leukemia victim seek a match. "When I saw the video of Jasmina it broke my heart. It is so unfair that for a black patient it's so much… Continue

Added by Gustavo on February 7, 2009 at 6:29pm — No Comments

Transplant surgeons remove healthy kidney through donor's vagina

In what is believed to be a first-ever procedure, surgeons at Johns Hopkins have successfully removed a healthy donor kidney through a small incision in the back of the donor’s vagina. “The kidney was successfully removed and transplanted into the donor’s niece, and both patients are doing fine,” says Robert Montgomery, M.D., Ph.D., chief of the transplant division at Johns Hopkins University School of Medicine who led the team that performed the historic operation.… Continue

Added by Gustavo on February 5, 2009 at 8:11pm — No Comments

Cronic Back Pain

darn, heck, the pain this morning is a bother, 1-10?? back, lower back, relentless..I'm under Kaiser Pain Mgmt for a while now, years. Kaiser and I go way back. Dr. Longstreth, from SD Kaiser, internist, was my link to getting my coma state body up to Kaiser Sunset, coma state long enough, at death's door. And then??? " Post a Blog " not a manefesto!! I love to write, double duh! LOL Happy New Year to all of you, and another good year it will be, 19 years and counting, God Will. Contentent keeps… Continue

Added by yolanda on January 7, 2009 at 1:57pm — No Comments

Immunosuppressive Risks In Facial Transplantation

Researchers in Cincinnati and Louisville report that immunosuppressive risks associated with facial transplantation may be lower than thought, possibly making the procedure a safer option for people who have suffered severe facial injuries. Previous data on the immunosuppression risks involved in facial transplantation were misleading, according to Rita Alloway, PharmD, and Steve Woodle, MD, of the University of Cincinnati (UC), and a University of Louisville team led by John Barker, MD, PhD. T… Continue

Added by Gustavo on January 6, 2009 at 6:45pm — No Comments